Health Fund Website :)
I have got my new wheelchair & are so pleased!
Why you should help me:
The only thing stopping me move on and living my life is my bad physical health.I have been getting progressively ill & disabled since 2007 when I was 17 (although I have had mild un-diagnosed problems since childhood) it has become clear the NHS has done all it can. I have exhausted all available NHS knowledge, I need specialized private healthcare which offers more treatment options.
Please donate money so I can see doctors who will actually be able to help me; I just need money to access suitable treatment.
I am now concentrating on raising funds for specialist private medical treatment which is
not available on the NHS. Now I have a new
wheelchair I will be able to leave my house, I want to try all the medication I can to improve my autonomic dysfunction (so I am well enough to socialize, shower daily, read books, eat & drink regular volumes, draw & do art like I used to, do more
physio, go on trips & generally be able to do more for myself) & do as much as I desperately want to.
With medication like octreotide I might be able to actually eat a meal in a restaurant, something I have not been able to do since I was 19 years now. I want to make me as well as possible so I can make the most of my new wheelchair... & make the most of my life.
I have four main physical health problems:
These all cause a variety of symptoms which intrude into my daily life. See my tab at the top of the page for examples of symptoms I have to endure every day.
1) Ehlers Danlos Syndrome
2) Autonomic problems (including Postural Orthostatic Tachycardia Syndrome aka POTS)
3) A chronic kidney
& kidney stones
4) Mast Cell problems (probs MCAD but need investigations & treatment)
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